We were able to go to San Francisco in September to meet with a physician there. The purpose of the visit with him was to get into better position and eligibility for a clinical trial and to hear about some alternate trial options that we might pursue. The reason for considering clinical trials is because as mentioned before, there are not a lot of good, successful options waiting around for us to try. The best one's out there we have already given to Owen. Clinical trials offer hopeful options but carry risks, and that is something we consider as we look into them. While in San Francisco for our day visit we were able to drive around the city. We saw the Bay Bridge. We were amazed by residential streets and architecture and we visited the Ghiridelli Square and sampled a little chocolate. Owen probably only enjoyed these things about 1/2 as much as we'd hoped just because he was experiencing a lot of hip pain.
|The Bay Bridge in the fog|
|A small sample of Owen's art....he has some abstract stuff going on!|
|Working on his art cards.|
His sleeping has been very sporadic due to some severe leg and back pain and insomnia from medications. When he's not sleeping, I'm not sleeping. The whole family feels it, even though it's mostly Owen and I that have long hours dealing with stuff in the night. I hear this comment all the time from people, and I think this same thing to myself. "He has every excuse to feel too tired, too sick, uncomfortable and unmotivated to spend so much effort on school" but he uses no excuse and has a stronger drive and motivation and most kids there. I think that it's a blessing and it's his one way of feeling like an eight year old doing eight year old things. It's pretty unconventional to sit with him and spend our days at the school, but cancer is pretty unconventional and it makes for a pretty unconventional family life as well. We want to give him every opportunity to do something he CAN do, because the reality is there are lot of things he CAN'T do.
Owen has been given happy moments and days through the generosity of others who give of their time and they want for him to find happiness. He was given the chance to be the "Thursdays Hero" at BYU with the football program. Of course there are perks and one of them is getting to meet people you might not normally have the opportunity to. He was also able to watch an RSL practice and meet the players. People do good things to find ways to cheer him up, make him feel special and give him things to look forward to. It is amazing that after 17 months of cancer treatment the charity never stops. People always want to help. I've said it before, but one thing I have learned is that people truly are GOOD!
|Real Salt Lake|
|Players signed his shirt|
|A one-on-one meeting with Bronco. The guy in charge of the program said this was unusual and something he hasn't seen Bronco do quite like this before. Owen is getting the special treatment for a special kid.|
|Cheering out the team|
|Lucky to get a jersey of his own.|
What's next for Owen is the biggest question. It's a question without a lot of sure answers. Miracles do happen. He may get into a study, he may have strength to fight and win his cancer in ways that have not been presented and maybe one of the options that we have been mulling over will turn out to be the right one. He has our love and attention beyond what he can comprehend. It takes an army of people to get through this trial and we are so lucky to have been surrounded by so many of our good friends, family and strangers. Our other kids have been patient and mature people as they see us fight for Owen. It takes everyone, it takes time and it takes energy that isn't really there sometimes. Small round blue cell tumor is an aggressive cancer as we have found. It has been a real educational experience to search, study and ponder which things are medically "right" for Owen. It is also frustrating, tiring and humbling as we try to understand this life. It has taught that we must always trust in the Lord and find faith even when we most want to let go and give up. I might be speaking for myself, but I think our family is finding great comfort in the closeness and time we enjoy with each other. There is a lot to be thankful for and finding something to be grateful for each day is what keeps us going.